En este libro conmovedor, la actriz chilena Leonor Varela, quien vive actualmente en Estados Unidos, relata la historia vivida con su hijo Matteo, diagnosticado leucodistrofia AGS (Leukodystrophy AGS) a los cuatro meses de vida. Jam s acept el diagn stico de los m dicos y emprendi una lucha f sica, emocional y espiritual para salvarle la vida.

En el camino --de comprender lo que ocurr a, de observar al hijo como un maestro, de pararse de nuevo--dej un registro indeleble del amor de una madre, y comenz a escribir para quitarse la ansiedad, los miedos y la pena. "Pero al mismo tiempo, hab a un prop sito en mi escritura. Guardar memoria de lo inconmensurable, del hecho cierto de que nadie puede quitarnos a nuestros seres queridos, de que habitan dentro de nosotros. De que la muerte es un velo, pero nuestras almas, lo que somos en esencia, siguen unidas."

ENGLISH DESCRIPTION

An honest and heartrending tale about the loss of a child and the faith that death will not separate souls from their loved ones.

In this moving book, Chilean actress Leonor Varela, who now lives in the United States, tells the true story of her son Matteo, diagnosed with Leukodystrophy AGS at four months old. She never accepted the doctors' diagnosis and undertook a physical, emotional, and spiritual fight to save his life.

Along the way-- to understand what was happening, to see her son as a teacher, and to pick herself up again-- she left an indelible record of a mother's love, and began to write to relieve her anxiety, fears, and grief. "But at the same time, there was a purpose in my writing. To make a memory of the immeasurable, of the certainty that nobody can take away our loved ones, that they live inside us. That death is a veil, but our souls, who we are in essence, remain united."